So yesterday I had nearly a litre of fluid drained from the lining of my heart(the second in 4 days) and 2 litres drained from my right lung (without anesthetic,but it was a doddle compaired to last time,having the Frames blaring in my ear helped too☺). I now have a drain in each, plus a cathether, and a canula in my jugular. I’m not posting this for sympathy and I really don’t mean to upset you❤ but this is the reality of stage IV cancer and…Continue Reading “Cure”
Just arrived in CUH for surgery, the heart filled up again😢.Will be here for a few days, in intensive care to start. X
I’m not please jasus on my last legs, these are just musings as I lie here with a nebulizer on my face ( a new and just a tad scary experience). There are many ways cancer can get you, heart failure, renal failure, respiratory failure, infection, sepsis, starvation etc, etc. Maybe mine has been decided, but things can change so fast. Earlier a lovely nurse came in closed the curtain and looked at me in such a way that I knew she had read my…Continue Reading “Really F…… unlucky”
So i’m in hospital again, can’t breath (Waterford this time, here’s hoping!). I’m still waiting for the new drug to be approved and to arrive, so it’s either start chemo or have the lung drained. I’ve decided to go for the latter. Fingers crossed they actually do something this time and I get home quick x
So last Tuesday I had a port (a small device inserted under the skin in the upper chest attached to a tube that connects to a vein in the neck) inserted under local anaesthetic. It’s not a very nice procedure that involves a lot of tugging and pressure to the area. So I’m thinking since I’ve had surgery on the right, with several skin lesions on the site and several fragile ribs it might be better if they put it on the left. I sign…Continue Reading “Port”
Being the stubborn yoke that I am I went online and I found another option.It’s only available here on a trial bases and I’m not eligible for that trial, but my oncologist thinks she can get it on compassionate request. A few weeks ago I could hardly breath and chemo seemed like my best option and as the cancer was in my scull too I was really concerned about my brain. According to my oncologist cancer to the brain usually spreads from the blood not…Continue Reading “Palbo”
An insight into the side effects that come with metastatic breast cancer treatments ( I have experienced several of them already), why some of us would rather go the alternative route and why these decisions are so difficult. On Tuesday I had my port put in in preparation for IV chemo, which I still haven’t confirmed I’m having. Deep down I know I probably have very little choice as the cancer is progressing but I just can’t come to terms with it and how it…Continue Reading “Side effects”
I guess I’ve made my decision, I looked at wigs today, I’m not happy about it, I wish we had better treatment options. It wasn’t as bad as I expected (I didn’t howl), but I’m really struggling with this one, because it’s not temporary, when it’s gone it’s gone, thats it. But here we go, the first pic top left is the real deal, the next two are my favourites so far, just checking styles not necessarily colours although who knows? Quite fancy myself as…Continue Reading “Wigs”
So after kicking up a bit of a fuss I finally got home yesterday.I have to admit for this fiercely independent, control freak, free spirit it was 12 days of total hell, although I suspect the suffocating stench of urine and feces, the sound of bowel movements over lunch, the sight of a trolley full of nappies and a little oldie sobbing every time a visitor left would test most people. The good news is there was no fluid around the heart and the fluid…Continue Reading “Dying seems like the easy bit”
